Do you have PCOS?

Well, in my relatively brief stay on these boards, I’ve likely earned a reputation as somewhat of a hypochondriac, thanks to my multiple health concerns (including amenorrhea, visceral fat and starvation mode), and complaints that I’ve been stuck in a 4 month-long plateau. Little did I know, all of these issues were not only very real, but were interconnected.

I went to a doctor regarding my amenorrhea, unsure if it was being caused by my weight loss/increased physical activity or if there was a more serious cause. They ran some initial tests and ruled out pregnancy and thyroid dysfunction. I was told to up my caloric intake to compensate for my more active lifestyle, and make another appointment if my cycle didn’t regulate itself. Well, it didn’t – so I went back. They did more comprehensive blood tests and it turns out that I have elevated testosterone and DHEA levels. I was referred to an endocrinologist, who is fairly certain that I have Polycystic Ovary Syndrome (PCOS). He did more blood work to confirm his suspicions, and I won’t have confirmation for about a week, but I did some research on the disorder, and its symptoms PERFECTLY explain all the problems that I’ve been having.

The cause of PCOS is believed to be insulin resistance, and for that reason, the body’s entire endocrine system is thrown out of whack. Symptoms aren’t only a direct result of having too much of the male hormone (causing acne, excess hair growth, etc.) but weight gain is most significant result of the disorder. So even after losing 60 lbs over the past year, I still have to eat an incredibly restricted (low-glycemic, reduced calorie) diet to maintain the weight I’m at now compared to women who don’t have PCOS. The good news is that they can put me on medication usually used to treat diabetics (ie. Metformin) to help me treat the symptoms and manage my weight.

I started this thread in the hopes that if there are other women who have suffered the problems that I did, they’ll be educated about the possibility that they have PCOS, and seek medical help. Also, I’m curious if there are any other women on this board who have been diagnosed with it, and are successfully battling it with medication and lifestyle changes. :)
 
I was diagnosed two months ago. I went to see a doctor after I gained 12 pounds in 3 months without changing my diet or excercise regime.

I'm now on a pill that's supposed to sort out the hormone side of the problem and also 6 times a week in the gym trying to sort out the weight problem. And let me tell you, the weight has been very hard to shift.

I know they prescribe Metmorfin to overweight women with PCOS to help with insulin resistance and I know people lose a lot of weight when they take it but I haven't been given a prescription and have to sweat the fat.

It would be interesting to hear from others with a similar problem.
 
well hi,
I haven't had a period in about 8 months. Not even a little bit. They ruled out pregnancy as well on me and did an ultrasound to check things out also blood tests. They told me they couldn't find anything wrong with me. They gave me a hormone pill (can't recall the name right now sorry!) the bottle is at home though, and it made me have a half a day of my cycle , then it just stopped. Now I have really WIERD stuff going on...like lactation....I'm NOT pregnant I've taken SO many tests like every two weeks! They are always negative. I've had a weight loss since I stopped having the periods of 30 pounds. Recently have lost another 3. I don't really know what is up with me maybe I have it??
 
hello_kitty said:
I know they prescribe Metmorfin to overweight women with PCOS to help with insulin resistance and I know people lose a lot of weight when they take it but I haven't been given a prescription and have to sweat the fat.

They did tell me that they often put women on the pill to correct the hormone imbalance, but it's not recommended for someone with my family history of blood clots. The last time I was on the pill, I had calf pain, which is a bad sign. If they do put me on anything, it will likely be Metformin, which I have NO problem with, if it means helping me to shed these 15 extra pounds.
Did your doctor give any reason why they didn't put you on Metformin? From what I understand, it has very few side-effects, and is a good idea for regulating insulin, since PCOS is essentially a precursor to adult-onset diabetes (which I have a family history of as well).

JaymeB - if you'd experienced weight gain, I wouldn't be surprised if you had PCOS. However, I haven't heard of anyone with insulin resistance losing that much weight in 8 months. Have you had your thyroid checked? If you've just been to a general practitioner for these tests, I'd highly recommend that you ask them to refer you to a reproductive endocrinologist instead.
 
JaymieB said:
well hi,
Now I have really WIERD stuff going on...like lactation....

The lactation is most likely due to whatever hormone it is that they put you on. It is very unlikely if you are lactating due to the hormone that you have PCOS. PCOS has been found to be one of the few causes of true low milk supply. The condition affects not only the hormones that stimilate milk production but also affects the breast tissue itself. Many women with PCOS need to use something called an SNS (supplemental nursing system) in order for them to successfully nurse their babies.

I really will try to avoid getting on any kind of soap box on this forum, but I can't help but mention this....if you are lactating and do not have a baby to nurse there are Human Milk Banks that are always in need of donations of milk. It is pooled and pasturized and then used in NICU's for preemies and in oncology wards for cancer pacients.
 
Well, I just got confirmation from my endocrinologist that my insulin levels are elevated. He put me on a “light dosage” of Metformin, which I should be getting soon. I’ll let you guys know if it alleviates any of my symptoms of PCOS, and most importantly, if it triggers any fat loss (something which I haven’t gotten to budge in months, despite rigorous diet and exercise).
 
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